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#1076776 - 11/05/08 04:30 PM Re: I really need my BOL friends to pray QCL
KTMiteComply Offline
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KTMiteComply
Joined: Jul 2007
Posts: 3,298
only if I want to....
Praying for peace and guidance for you and your family dear friend! {{{hugs}}}}
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Trust in the Lord with ALL your heart...Prov 3:5-6

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#1076777 - 11/05/08 04:31 PM Re: I really need my BOL friends to pray pjs
RebekahL CRCM Offline
Platinum Poster
RebekahL CRCM
Joined: Feb 2003
Posts: 780
Big Sky Country
Pizza Queen, I desperately encourage you to ask your doctor to look into Monomelic Amyotrophy. As I said in a post back in February, my husband was diagnosed with the disease 12 years ago. It took the doctors a long time to figure it out -- in fact, he was finally diagnosed by research specialists at the National Institutes of Health. All the doctors originally thought it was ALS, then moved on to conduct many, many tests including MRIs and electric shocks on individual nerves in his arms and legs.

His hands have no muscle tone, and look "hollow" -- especially below his thumb. What should be a strong mass of muscle is just a hollow cavity. He has trouble with anything requiring manual dexterity. The good news is that Monomelic Amyotrophy does not spread throughout the body. While his hands will never get better, they are the only muscle groups affected. It is a very rare disease, and might not be on your doctor's radar. Please mention it.
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Me, Type A? Maybe - I'm not done analyzing it yet.

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#1076808 - 11/05/08 04:50 PM Re: I really need my BOL friends to pray RebekahL CRCM
waldensouth Offline
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waldensouth
Joined: Nov 2001
Posts: 7,974
FINALLY ABOVE the gnat line
Many (((((hugs))))) for you PQ. This is a scary time and I pray that you and your husband will have the answers you need quickly. May God grant the doctors the wisdom to properly diagnose this problem and give you strength.
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"Once you learn to read, you will be forever free."

- Frederick Douglass




My Opinion Only.

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#1076813 - 11/05/08 04:56 PM Re: I really need my BOL friends to pray waldensouth
P*Q Offline

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P*Q
Joined: May 2001
Posts: 8,439
Somewhere
Thank you all so very much, it means a lot. Rebehak, I copied your post and sent it to my husband to bring to his doctors attention. Thank you again all.

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#1076821 - 11/05/08 05:07 PM Re: I really need my BOL friends to pray P*Q
RR Jen Offline
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RR Jen
Joined: May 2003
Posts: 3,759
Running and riding everywhere ...
Hugs and prayers for you and your guys!!
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I don't need any more negativity in my life...be positive and helpful people or I will kick you in the shins!!!

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#1077019 - 11/05/08 07:11 PM Re: I really need my BOL friends to pray RR Jen
thomasj Offline
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Joined: Mar 2001
Posts: 5,063
Pennsylvania
Prayers and positive thoughts for you and your husband are coming your way PQ
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Knowledge is knowing what to say. Wisdom is knowing when to say it.

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#1077119 - 11/05/08 08:21 PM Re: I really need my BOL friends to pray thomasj
BurntSienna Offline
Diamond Poster
Joined: Aug 2006
Posts: 2,407
Midwest
Prayers and best wishes coming out from Illinois.
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"Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow." - Melody Beattie

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#1077179 - 11/05/08 08:48 PM Re: I really need my BOL friends to pray BurntSienna
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
{{{HUGS}}} and prayers for your husband (and for your piece of mind) Like TR says, you know how to reach me if you want to talk or just vent.
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Treading water in a hurricane

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#1077423 - 11/05/08 11:19 PM Re: I really need my BOL friends to pray corkygirl
Tigg Offline
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Tigg
Joined: Jan 2008
Posts: 6,389
Looking for My Happy Place....
Oh, PQ I'm so sorry! Prayers from LA on their way!
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What would you do if you knew you could not fail? ~ Dr. R Schuller

My opinion only.

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#1077439 - 11/05/08 11:36 PM Re: I really need my BOL friends to pray Tigg
Sing A Little Offline
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Sing A Little
Joined: Jul 2006
Posts: 3,889
CA
My thoughts and prayers are with you and your hubby PQ. Please keep us posted.
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He who sings scares away his woes. ~Cervantes

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#1077441 - 11/05/08 11:39 PM Re: I really need my BOL friends to pray Sing A Little
Becka Marr Offline
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Becka Marr
Joined: Oct 2005
Posts: 6,152
Hang in there, PQ!
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To avoid criticism do nothing, say nothing, be nothing. ~Elbert Hubbard

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#1077563 - 11/06/08 01:47 PM Re: I really need my BOL friends to pray Becka Marr
Sinatra Fan Offline
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Sinatra Fan
Joined: Jul 2002
Posts: 5,568
New Jersey
So sorry to hear about this, PQ. I pray that the doctors will have great wisdom in diagnosis, and great skill in treatment.
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Management is doing things right; leadership is doing the right things. Peter Drucker

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#1079313 - 11/07/08 10:17 PM Re: I really need my BOL friends to pray Sinatra Fan
P*Q Offline

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P*Q
Joined: May 2001
Posts: 8,439
Somewhere
Well his MRI is next Tuesday, follow-up appt. on the 18th. Carpal tunnel surgery on 19th. UGH!!!! Thank you all for your positive thoughts, I really need them.

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#1079466 - 11/10/08 12:16 PM Re: I really need my BOL friends to pray P*Q
DeeQ Offline
10K Club
DeeQ
Joined: Dec 2002
Posts: 40,760
Turnpike Exit 10
Keep hanging, PQ! ::hugs::
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Get your facts first, then you can distort them as you please. - Mark Twain

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#1079486 - 11/10/08 01:39 PM Re: I really need my BOL friends to pray DeeQ
Rocky P Offline
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Joined: Jun 2003
Posts: 7,258
Florida
PQ, our wishes are with you, your sweetie and the boys. I'm sure it is a challange mixing the uncertanty of medical and planning for joyful holidays.

You have always been such a strength to all of us on BOL, and hope that a lot of that energy can head back to New England.

Our thoughts and prayers are with you. Please keep us posted.
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Integrity. With it, nothing else matters. Without it, nothing else matters.

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#1080561 - 11/12/08 06:31 PM Re: I really need my BOL friends to pray Rocky P
P*Q Offline

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P*Q
Joined: May 2001
Posts: 8,439
Somewhere
Hubby had MRI yesterday. Results not until next Tuesday. I'm really trying to not freak out when we don't even know the results but the doctor is still doing further testing for ALS. I have tears in my eyes as I even type this but all of your thoughts and prayers do help, so thank you again for all of your kind words. I'll keep you posted.

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#1080573 - 11/12/08 06:41 PM Re: I really need my BOL friends to pray P*Q
DeeQ Offline
10K Club
DeeQ
Joined: Dec 2002
Posts: 40,760
Turnpike Exit 10
Oh PQ, hang in there, sweetie. You are all in my thoughts.
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Get your facts first, then you can distort them as you please. - Mark Twain

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#1080578 - 11/12/08 06:44 PM Re: I really need my BOL friends to pray DeeQ
Tigg Offline
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Tigg
Joined: Jan 2008
Posts: 6,389
Looking for My Happy Place....
Stay strong PQ! We're with you!
_________________________
What would you do if you knew you could not fail? ~ Dr. R Schuller

My opinion only.

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#1080589 - 11/12/08 06:55 PM Re: I really need my BOL friends to pray Tigg
corkygirl Offline
Power Poster
Joined: Sep 2004
Posts: 4,241
middle of the country
Prayers heading up to God right now!!! {{{{HUGS}}}}
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Treading water in a hurricane

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#1080601 - 11/12/08 07:02 PM Re: I really need my BOL friends to pray corkygirl
hmdagal Offline
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hmdagal
Joined: Dec 2002
Posts: 3,813
Hang in there, PQ. It sounds like he has a very thorough doctor, which is a GOOD thing.

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#1080660 - 11/12/08 08:00 PM Re: I really need my BOL friends to pray hmdagal
KTMiteComply Offline
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KTMiteComply
Joined: Jul 2007
Posts: 3,298
only if I want to....
Thinking about you guys PQ!!!! Prayers and Hugs!!
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Trust in the Lord with ALL your heart...Prov 3:5-6

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#1080689 - 11/12/08 08:18 PM Re: I really need my BOL friends to pray KTMiteComply
Snow Bunny Offline
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Snow Bunny
Joined: Jun 2006
Posts: 14,141
In the Snow :)
Prayers and Hug here also PQ! Hang in there!
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The woods are lovely dark & deep & I have promises to keep & miles to go before I sleep and miles to go before I sleep

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#1080718 - 11/12/08 08:33 PM Re: I really need my BOL friends to pray Snow Bunny
Countess Kiwi Offline
Diamond Poster
Joined: Jun 2002
Posts: 1,815
Minnesota
(((PQ))) Sending warm thoughts and prayers your way.
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Do what you can, with what you have, where you are.
~Theodore Roosevelt~

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#1080911 - 11/12/08 11:22 PM Re: I really need my BOL friends to pray Countess Kiwi
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
PQ, you're all in my thoughts & prayers.

((PQ))
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#1080946 - 11/13/08 12:50 AM Re: I really need my BOL friends to pray Princess Leia
Mrs. Rizzo Offline
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Mrs. Rizzo
Joined: Mar 2006
Posts: 10,392
Curled up by the fire...
Keep your chin up! Prayers for you guys!!!
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Take responsibility for your life.

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