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#1764126 - 12/05/12 06:38 PM Prayers for Friend's Newborn Son
Busy Bee, CRCM Offline
Diamond Poster
Joined: Feb 2004
Posts: 1,089
PacificNW
Hello, All!

I am asking you all to be praying for the newborn son of some friends of mine from church. Their son, Cash, was born on the 26th of November and within a few hours, flown to Seattle Children's Hospital with unknown complications. His parents, Justin and Jenni, received an official diagnosis yesterday of a very rare genetic disease called Zellweger Syndrome. I've read a little bit about this disease and honestly, don't understand it, but what I do know is that they were told that Baby Cash's prognosis is one year or less. Justin and Jenni are amazing people and have incredibly positive attitudes about this situation. They know if God chooses to heal their son, that He will and if not, that somehow, Cash's life will bring glory to God.

If you're the praying type, please be lifting this family up (they have three older children). Otherwise, positive thoughts would be most appreciated! Jenni is still with Cash in Seattle until he is stable enough to come home and they have a care plan in place. The mountain passes this time of year can be challenging, so please be praying for their travels as well.

Thank you all so much!!

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#1764150 - 12/05/12 07:06 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
DeeQ Offline
10K Club
DeeQ
Joined: Dec 2002
Posts: 40,762
Turnpike Exit 10
Sending good thoughts for all of them! ((hugs))
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Get your facts first, then you can distort them as you please. - Mark Twain

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#1764158 - 12/05/12 07:12 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
RR Joker Offline
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RR Joker
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Posts: 20,654
The Swamp
Seeing something like this makes me think just how small my issues truly are. Positive and uplifting thoughts for them all...and for their safe travels.
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My opinion only. Not legal advice.

Say you'll haunt me - Stone Sour

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#1764159 - 12/05/12 07:14 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Purple Pride Offline
Member
Purple Pride
Joined: Jan 2006
Posts: 74
Where I am supposed to be
Prayers coming. Also, you may want to direct them to Nancy Guthrie. She is an author (Holding onto Hope)and speaker. She and her husband lost 2 children to Zellweger's Syndrome. She has written on how to deal with grief and loss and hopefully could be a blessing to your friends.

ETA: Ms. Guthrie recently spoke at the Desiring God Conference: The Works of God - God's Good Design in Disability.
Last edited by Purple Pride; 12/05/12 07:16 PM. Reason: Add info.
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Do, or do not; there is no try. - Yoda

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#1764164 - 12/05/12 07:21 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Busy Bee, CRCM Offline
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Joined: Feb 2004
Posts: 1,089
PacificNW
Thanks, Purple Pride! I will most definitely look into that book. Possibly purchase it for them and have our pastor give it to them if/when they're ready. Much appreciated!

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#1764214 - 12/05/12 08:32 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
dottiec Offline
Gold Star
Joined: Jul 2007
Posts: 305
Positive thoughts coming their way from Pennsylvania.
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"Life begins at the end of your comfort zone."

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#1764219 - 12/05/12 08:36 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
waldensouth Offline
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waldensouth
Joined: Nov 2001
Posts: 7,979
FINALLY ABOVE the gnat line
Prayers being lifted up for Cash, Justin, and Jenni.
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"Once you learn to read, you will be forever free."

- Frederick Douglass




My Opinion Only.

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#1764482 - 12/06/12 02:51 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
basilring Offline
Gold Star
Joined: Mar 2012
Posts: 296
Spartan Country!
They have amazing strength. Prayers for them and baby Cash!
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Everyone should believe in something. I believe I will head for the beach!

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#1764539 - 12/06/12 03:36 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
SLU Voice Offline
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SLU Voice
Joined: Apr 2004
Posts: 288
Hammond, LA
Prayers from Southeastern Louisiana.

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#1764548 - 12/06/12 03:47 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Bankbb1, PITA Offline
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Bankbb1, PITA
Joined: Aug 2004
Posts: 38
The Sovereign State Of Oklahom...
Prayers of healing, strength and understanding for all of them!
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Run like the wind, but never forget gravity. wink

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#1764565 - 12/06/12 04:10 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Quadspapa Offline
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Quadspapa
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Posts: 3,275
Quadrupletville, Texas
Will add that family to my prayer list. Thanks Busy Bee.
I'm glad they are God fearing and loving people as this will surely test them.

"And now just as you trusted Christ to save you, trust him, too, for each day's problems; live in vital union with him." Colossians 2:6
_________________________
"I don''t make jokes. I just watch the government and report the facts." - - Will Rogers (still relevant today)

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#1765270 - 12/07/12 07:07 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Busy Bee, CRCM Offline
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Joined: Feb 2004
Posts: 1,089
PacificNW
My friends have a meeting with all of the specialists at Children's Hospital today. They are putting together a care plan for Baby Cash in the hopes that Mommy and Daddy can bring him home soon. He's stable right now and doing as well as can be expected. Even the doctors are doing research now to see what they can do to help and treat the symptoms of this disease. It's just so rare and there hasn't been very much research as of yet, so there are very limited answers. Jenni did say that they got a new attending doctor that is absolutely wonderful and they had an immediate connection because they are of the same faith. I think it's a comfort to them to have a doctor that they can relate to so well.

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#1765381 - 12/07/12 09:23 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Jay Bruce Offline
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Jay Bruce
Joined: Apr 2002
Posts: 546
The New Loft Chamber
Busy Bee,

John Cameron Bruce was born to my wife and me in 1997. He had a rare genetic disease and lived with us for only 55 days (all of which were spent in the NICU). So, I can empathize with what your friends are experiencing now. I will be praying for them and Cash. Since our son died we have seen amazing displays of God's grace to us, and I trust that will be true of your friends too -- whatever the outcome and however difficult the road will be.

My wife now runs a state-wide non-profit organization (Oklahoma Family Network) that mentors families in such situations. And I have written a book, From Grief to Glory, that chronicles the stories of many Christians from past ages who have walked this same road. Here is a link to my web site From Grief to Glory which tells some of our story.

Blessings and prayers from OKC.

[PS - It's always a joy for me to send out books as gifts to other parents and, hopefully, to get acquainted with them. It's part of the healing process.]
_________________________
J. Bruce

"A man in a kilt is a man and a half!"

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#1765561 - 12/10/12 05:16 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Busy Bee, CRCM Offline
Diamond Poster
Joined: Feb 2004
Posts: 1,089
PacificNW
My friends met with the team of doctors and specialists on Friday to determine the best course of action for Baby Cash. Baby's CO2 levels are extremely high because his breathing is so shallow. Because of this, they were given the option of putting in a traech and letting a ventilator do some of the work for his little body. This would mean 2-3 more months in the hospital then a live in nurse if/when he is allowed to go home. The other "option" they were given was to put Baby on high flow humidified oxygen and see if the CO2 levels improved. After many tears and prayers, they chose the oxygen. Baby's CO2 levels had not improved as of yesterday morning. frown However, I did just get a text that they will be bringing Cash home tomorrow. At this point, they're choosing to continue to pray for a miracle. My heart breaks for them!!

Please continue to pray! Thank you!

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#1765581 - 12/10/12 06:13 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
RR Joker Offline
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Joined: Nov 2002
Posts: 20,654
The Swamp
I cannot imagine how difficult this all must be for them. frown
_________________________
My opinion only. Not legal advice.

Say you'll haunt me - Stone Sour

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#1765620 - 12/10/12 07:29 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Bankbb1, PITA Offline
Junior Member
Bankbb1, PITA
Joined: Aug 2004
Posts: 38
The Sovereign State Of Oklahom...
I think many people see this thread and say a silent prayer but don't have any idea what to say or do to try to be a comfort ( I for one cannot allow my mind to even imagine it).
So here is a prayer for you and for them for God's Holy blessings of healing and understanding.
J Bruce, for you and yours as well and I hope that you can be a blessing on them.
_________________________
Run like the wind, but never forget gravity. wink

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#1765637 - 12/10/12 07:50 PM Re: Prayers for Friend's Newborn Son Bankbb1, PITA
Busy Bee, CRCM Offline
Diamond Poster
Joined: Feb 2004
Posts: 1,089
PacificNW
Originally Posted By: Bankbb1, PITA
I think many people see this thread and say a silent prayer but don't have any idea what to say or do to try to be a comfort ( I for one cannot allow my mind to even imagine it).


I agree!! I rarely comment on a prayer request but always pray. I've been posting updates as I've gotten them so that those that are praying will know how to pray or specifics for praying. I can not express how grateful I am (as well as the family) for all the people that are lifting them up. Thank you all!!

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#1765669 - 12/10/12 08:31 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
HRH Okie Banker Offline
Power Poster
Joined: Jan 2003
Posts: 3,070
Oklahoma
Originally Posted By: Busy Bee, CRCM
Originally Posted By: Bankbb1, PITA
I think many people see this thread and say a silent prayer but don't have any idea what to say or do to try to be a comfort ( I for one cannot allow my mind to even imagine it).


I agree!! I rarely comment on a prayer request but always pray. I've been posting updates as I've gotten them so that those that are praying will know how to pray or specifics for praying. I can not express how grateful I am (as well as the family) for all the people that are lifting them up. Thank you all!!


Ditto with tears and lots of prayers for Cash and his loved ones.
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Just working here until I get my letter from Hogwarts.

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#1765678 - 12/10/12 09:10 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Skittles Online
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Skittles
Joined: Sep 2002
Posts: 13,963
TN
Yes that's the case. I don't know what to say; however I can pray for this family.
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#1765863 - 12/11/12 03:20 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
BurntSienna Offline
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Joined: Aug 2006
Posts: 2,407
Midwest
Prayers for the family coming from Illinois. May they find peace with the situation and place their trust in God.
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"Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow." - Melody Beattie

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#1765888 - 12/11/12 03:47 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Y'all Comply Offline
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Y'all Comply
Joined: Aug 2010
Posts: 214
Land of Pears
My heart aches for your friends. Sending many prayers from NM.
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CRCM, CAMS - Be Grateful!!

FKA Jenabq

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#1765898 - 12/11/12 03:57 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
basilring Offline
Gold Star
Joined: Mar 2012
Posts: 296
Spartan Country!
Well said Bankbb1. I struggle each time with what words to say. I did not even know what to say to J Bruce after visiting his amazing site.

Glad little Cash can be taken home and I will pray right along with them for their miracle.
_________________________
Everyone should believe in something. I believe I will head for the beach!

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#1765914 - 12/11/12 04:18 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Busy Bee, CRCM Offline
Diamond Poster
Joined: Feb 2004
Posts: 1,089
PacificNW
Thank you again, everyone! Baby Cash is coming home today! They have a couple of training exercises and lessons that they need to go through this morning (feeding tube and basic care) and then they'll be traveling home. They have to drive through a couple of mountain passes, so please pray for safety in the winter weather.

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#1765985 - 12/11/12 05:09 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Ready to Retire Offline
Diamond Poster
Joined: Aug 2005
Posts: 2,313
Living in the land of Oz
Prayers coming their way from PA. I cannot imagine what these parents are going through. I have learned to thank God every day for my 5 healthy grandchildren.

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#1766221 - 12/11/12 09:03 PM Re: Prayers for Friend's Newborn Son Busy Bee, CRCM
Beagles22 Offline
Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
Sending my prayers to them and for all of you that are praying with them, and to you as well Busy Bee for adding all of us to their prayer chain.

The grace of God will get them through this, but none of us can heal the pain that will be ripping through them throughout this time in their lives. So many of us lose children from womb to adulthood, and there is just no way to comfort other than prayer. I am glad their doctor is of their faith and that will make all decisions at this difficult time easier I believe.
_________________________
Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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