My sweet grandson was diagnosed with NEHI in November at 4 months old. NEHI is a rare Interstitial Lung Disease. He is on oxygen 24/7, but we are hopeful he can outgrow needing it, if he can gain more weight. Since he takes about 80 breaths a minute, which uses up a lot of calories, he hasn't reached 15 pounds yet. But you won't find a happier little guy when he is feeling well.
Check out the chILD-Foundation website for more info on these little ones and their fund raising efforts for research.