My sweet grandson was diagnosed with NEHI in November at 4 months old. NEHI is a rare Interstitial Lung Disease. He is on oxygen 24/7, but we are hopeful he can outgrow needing it, if he can gain more weight. Since he takes about 80 breaths a minute, which uses up a lot of calories, he hasn't reached 15 pounds yet. But you won't find a happier little guy when he is feeling well.

Check out the chILD-Foundation website for more info on these little ones and their fund raising efforts for research.

Sending many prayers for your grandson that he grows out of this. Poor thing!

How very scary! I'm with Okie..sending happy growing up and out of it thoughts!