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#2236956 - 05/19/20 07:56 PM Lynne's Battle - More Prayers
RVFlyboy Offline
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Joined: Oct 2000
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Soaring over Georgia
Those of you that have been on here for a while know that one of two situations that resulted in there even being a BOL Couch was my wife Lynne's battle with necrotizing acute pancreatitis just over 15 years ago. She spend 40 days in ICU, 100 days in the hospital, and nearly died on multiple occasions. Since that time, she has had an ongoing battle with worsening chronic pancreatitis interspersed with episodes of acute pancreatitis. She has not had a pain free day in over 15 years in spite of ongoing pain management treatment. In the last 9 months or so, her pain level has dramatically increased and substantially diminished her quality of life. But we hope that is about to see a big improvement.

On May 28 she is scheduled to have surgery at MUSC in Charleston, SC. The procedure she is having is called a total pancreatectomy with islet autotransplantation (TPIAT). MUSC is one of only 30 centers in the country that perform this procedure. More information about it is available here: https://muschealth.org/medical-serv...ancreatitis-surgery/total-pancreatectomy and here: https://muschealth.org/medical-serv...s-surgery/islet-cell-transplant-surgery. This is a complex surgery and we definitely want your prayers for a successful outcome. Many patients undergoing this procedure experience significant pain reduction and improved quality of life. Regardless of those outcomes, this procedure will eliminate any future episodes of acute pancreatitis, chronic pancreatitis, and will also eliminate the risk of pancreatic cancer which is substantially elevated for those with chronic pancreatitis.

To keep everyone abreast of her recovery, I have set up a Caring Bridge page where I will be able to post updates. You can find that here: https://www.caringbridge.org/visit/lbedsole

Thank you to all those that helped in her recovery 15 years ago through your prayers and thanks to all of you that will be praying us through this time too.
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Jim Bedsole, CRCM, CBA, CFSA, CAFP
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#2236964 - 05/19/20 08:07 PM Re: Lynne's Battle - More Prayers RVFlyboy
Skittles Offline
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TN
I remember this well, Jim and will continue to pray for her recovery - and for you and your entire family. And stay home and stay healthy!!
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#2236983 - 05/20/20 11:14 AM Re: Lynne's Battle - More Prayers RVFlyboy
E.E.G.B Offline
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the sandy shore
Thinking of y'all!
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#2236988 - 05/20/20 12:50 PM Re: Lynne's Battle - More Prayers RVFlyboy
Purple Pride Offline
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Prayers for you and your family during this time.
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#2237002 - 05/20/20 02:59 PM Re: Lynne's Battle - More Prayers RVFlyboy
DeeQ Offline
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Turnpike Exit 10
I remember as well, you are both in my thoughts.
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#2237017 - 05/20/20 03:50 PM Re: Lynne's Battle - More Prayers RVFlyboy
one deer Offline
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So glad to hear there is some hope for a better quality of life for your wife. Dearest Father in heaven pour your healing blessings over Lynne, restore to her the best quality of life so she can enjoy her family and all the things she finds pleasurable. Provide her body with resilient strength for the surgery and recovery process. Guide her doctors, surgical team and aftercare nursing team mentally and physically for this strenuous event. Pour your healing faith over her family so they may feel comfort and peace during this worrisome time. Most of all God place your shield of protection around Lynne from worldly and unworldly dangers that she may fear and that you know exist around her. Amen.

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#2237023 - 05/20/20 04:29 PM Re: Lynne's Battle - More Prayers RVFlyboy
Truffle Royale Offline

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Continued prayers from Wisconsin, Jim.

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#2237112 - 05/21/20 05:54 PM Re: Lynne's Battle - More Prayers RVFlyboy
chenin Offline
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Sending prayers from MS.

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#2237125 - 05/21/20 08:37 PM Re: Lynne's Battle - More Prayers RVFlyboy
Lestie G Offline

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Near the Land of Enchantment
I'll be praying for Lynne, you and all her medical team - for successful surgery, quick and complete healing, and peace and strength for you. Thanks for letting us know!
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#2237172 - 05/22/20 08:02 PM Re: Lynne's Battle - More Prayers RVFlyboy
JWills, CRCM Offline
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The Mitten State
Will keep you and Lynne in my prayers.
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#2237186 - 05/22/20 09:48 PM Re: Lynne's Battle - More Prayers RVFlyboy
edAudit Offline
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You are here
Best of luck prayers sent.
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#2237205 - 05/26/20 03:56 PM Re: Lynne's Battle - More Prayers RVFlyboy
RR Joker Offline
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The Swamp
Definitely prayers and good vibes headed her way. smile
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#2237213 - 05/26/20 05:15 PM Re: Lynne's Battle - More Prayers RVFlyboy
hmdagal Offline
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Sending prayers for all.

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#2237229 - 05/26/20 06:55 PM Re: Lynne's Battle - More Prayers RVFlyboy
waldensouth Offline
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FINALLY ABOVE the gnat line
Will keep you and Lynne in my prayers.
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#2237232 - 05/26/20 07:18 PM Re: Lynne's Battle - More Prayers RVFlyboy
Island Dreaming Offline
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midwest
prayers heading your way
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#2237294 - 05/28/20 12:28 PM Re: Lynne's Battle - More Prayers RVFlyboy
Skittles Offline
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Praying for Lynne today - for you and the rest of the family - for the doctors - for the nurses - and for the success of the surgery.
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#2237297 - 05/28/20 01:12 PM Re: Lynne's Battle - More Prayers RVFlyboy
doodles Offline
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PA
Thoughts and prayers for Lynne's surgery and for those of you that have to wait it out. Praying that she gets some relief from the struggles she has been dealing with all these years.

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#2237347 - 05/29/20 02:14 PM Re: Lynne's Battle - More Prayers RVFlyboy
Truffle Royale Offline

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Caring page has updated news for all interested.

Prayers continuing for Lynne and all the family.

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#2237417 - 06/01/20 03:49 PM Re: Lynne's Battle - More Prayers RVFlyboy
P*Q Offline

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You got them!

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#2237476 - 06/02/20 05:35 PM Re: Lynne's Battle - More Prayers RVFlyboy
HRH Okie Banker Offline
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Any update on Lynne? I so pray that it all went well.
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#2237481 - 06/02/20 06:40 PM Re: Lynne's Battle - More Prayers RVFlyboy
Skittles Offline
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HRH - if you click on Lynne's Caringbridge link that Jim provided and look at the journals you can see the posts that will give you the updates.
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#2237869 - 06/10/20 07:59 PM Re: Lynne's Battle - More Prayers Skittles
HRH Okie Banker Offline
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Originally Posted by Skittles
HRH - if you click on Lynne's Caringbridge link that Jim provided and look at the journals you can see the posts that will give you the updates.


Thank you! Hope all continues to go well day by day.
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Just working here until I get my letter from Hogwarts.

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#2238484 - 06/23/20 01:28 PM Re: Lynne's Battle - More Prayers RVFlyboy
Skittles Offline
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Jim - any updates? Nothing has been posted on the CaringBridge website since the 5th.
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#2238549 - 06/24/20 01:43 PM Re: Lynne's Battle - More Prayers RVFlyboy
RVFlyboy Offline
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Soaring over Georgia
Just continuing slow recovery and still dealing with both surgery pain and ongoing pancreas pain. She has an appointment with pain management clinic that she has been working with on 7/16 and will explore possible next steps. Its an ongoing battle with pain management in the war on opiates, and Lynne is collateral damage in that war. She's someone who absolutely needs and doesn't abuse narcotics, but getting what she needs is a battle with docs, insurance, and pharmacies every single month.
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Jim Bedsole, CRCM, CBA, CFSA, CAFP
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#2238553 - 06/24/20 02:25 PM Re: Lynne's Battle - More Prayers RVFlyboy
Skittles Offline
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I'm so sorry that she's still in such pain. It's easy to forget with the ongoing war with opiate addiction that some people do need them and don't abuse them. I hope she finds some relief soon.

Your family is still in my prayers.
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