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#2236956 - 05/19/20 07:56 PM
Lynne's Battle - More Prayers
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Joined: Oct 2000
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Soaring over Georgia
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Those of you that have been on here for a while know that one of two situations that resulted in there even being a BOL Couch was my wife Lynne's battle with necrotizing acute pancreatitis just over 15 years ago. She spend 40 days in ICU, 100 days in the hospital, and nearly died on multiple occasions. Since that time, she has had an ongoing battle with worsening chronic pancreatitis interspersed with episodes of acute pancreatitis. She has not had a pain free day in over 15 years in spite of ongoing pain management treatment. In the last 9 months or so, her pain level has dramatically increased and substantially diminished her quality of life. But we hope that is about to see a big improvement. On May 28 she is scheduled to have surgery at MUSC in Charleston, SC. The procedure she is having is called a total pancreatectomy with islet autotransplantation (TPIAT). MUSC is one of only 30 centers in the country that perform this procedure. More information about it is available here: https://muschealth.org/medical-serv...ancreatitis-surgery/total-pancreatectomy and here: https://muschealth.org/medical-serv...s-surgery/islet-cell-transplant-surgery. This is a complex surgery and we definitely want your prayers for a successful outcome. Many patients undergoing this procedure experience significant pain reduction and improved quality of life. Regardless of those outcomes, this procedure will eliminate any future episodes of acute pancreatitis, chronic pancreatitis, and will also eliminate the risk of pancreatic cancer which is substantially elevated for those with chronic pancreatitis. To keep everyone abreast of her recovery, I have set up a Caring Bridge page where I will be able to post updates. You can find that here: https://www.caringbridge.org/visit/lbedsoleThank you to all those that helped in her recovery 15 years ago through your prayers and thanks to all of you that will be praying us through this time too.
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Jim Bedsole, CRCM, CBA, CFSA, CAFP My posts - my opinions
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#2236964 - 05/19/20 08:07 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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I remember this well, Jim and will continue to pray for her recovery - and for you and your entire family. And stay home and stay healthy!!
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#2236983 - 05/20/20 11:14 AM
Re: Lynne's Battle - More Prayers
RVFlyboy
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the sandy shore
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Thinking of y'all!
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#2236988 - 05/20/20 12:50 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Prayers for you and your family during this time.
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#2237002 - 05/20/20 02:59 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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I remember as well, you are both in my thoughts.
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#2237017 - 05/20/20 03:50 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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So glad to hear there is some hope for a better quality of life for your wife. Dearest Father in heaven pour your healing blessings over Lynne, restore to her the best quality of life so she can enjoy her family and all the things she finds pleasurable. Provide her body with resilient strength for the surgery and recovery process. Guide her doctors, surgical team and aftercare nursing team mentally and physically for this strenuous event. Pour your healing faith over her family so they may feel comfort and peace during this worrisome time. Most of all God place your shield of protection around Lynne from worldly and unworldly dangers that she may fear and that you know exist around her. Amen.
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#2237112 - 05/21/20 05:54 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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#2237125 - 05/21/20 08:37 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Near the Land of Enchantment
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I'll be praying for Lynne, you and all her medical team - for successful surgery, quick and complete healing, and peace and strength for you. Thanks for letting us know!
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#2237172 - 05/22/20 08:02 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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The Mitten State
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Will keep you and Lynne in my prayers.
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#2237186 - 05/22/20 09:48 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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You are here
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Best of luck prayers sent.
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#2237213 - 05/26/20 05:15 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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#2237229 - 05/26/20 06:55 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Will keep you and Lynne in my prayers.
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#2237232 - 05/26/20 07:18 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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midwest
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prayers heading your way
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#2237294 - 05/28/20 12:28 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Praying for Lynne today - for you and the rest of the family - for the doctors - for the nurses - and for the success of the surgery.
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#2237476 - 06/02/20 05:35 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Any update on Lynne? I so pray that it all went well.
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#2237481 - 06/02/20 06:40 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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HRH - if you click on Lynne's Caringbridge link that Jim provided and look at the journals you can see the posts that will give you the updates.
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#2237869 - 06/10/20 07:59 PM
Re: Lynne's Battle - More Prayers
Skittles
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Oklahoma
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HRH - if you click on Lynne's Caringbridge link that Jim provided and look at the journals you can see the posts that will give you the updates. Thank you! Hope all continues to go well day by day.
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Just working here until I get my letter from Hogwarts.
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#2238484 - 06/23/20 01:28 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Jim - any updates? Nothing has been posted on the CaringBridge website since the 5th.
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#2238549 - 06/24/20 01:43 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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Joined: Oct 2000
Posts: 5,992
Soaring over Georgia
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Just continuing slow recovery and still dealing with both surgery pain and ongoing pancreas pain. She has an appointment with pain management clinic that she has been working with on 7/16 and will explore possible next steps. Its an ongoing battle with pain management in the war on opiates, and Lynne is collateral damage in that war. She's someone who absolutely needs and doesn't abuse narcotics, but getting what she needs is a battle with docs, insurance, and pharmacies every single month.
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Jim Bedsole, CRCM, CBA, CFSA, CAFP My posts - my opinions
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#2238553 - 06/24/20 02:25 PM
Re: Lynne's Battle - More Prayers
RVFlyboy
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I'm so sorry that she's still in such pain. It's easy to forget with the ongoing war with opiate addiction that some people do need them and don't abuse them. I hope she finds some relief soon.
Your family is still in my prayers.
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