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#2288465 - 09/07/23 02:51 PM health concern
raitchjay Offline
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Have debated posting anything, but i keep things pretty close to the vest in my actual life, so i could use some good thoughts. I find out today about a major health concern i have going on....appointment is at 1:00. I'm really hoping for good news.
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#2288466 - 09/07/23 02:58 PM Re: health concern raitchjay
Cowboys Fan Online
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Sending lots of positive thoughts your way!
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#2288469 - 09/07/23 03:15 PM Re: health concern raitchjay
Sunshine Lady Offline
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Lots of POSITIVE thoughts!!!
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#2288470 - 09/07/23 03:15 PM Re: health concern raitchjay
Island Dreaming Offline
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Posts: 231
midwest
send good vibes for positive news!!
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#2288471 - 09/07/23 03:20 PM Re: health concern raitchjay
waldensouth Offline
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waldensouth
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FINALLY ABOVE the gnat line
Praying for you, my friend.
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#2288472 - 09/07/23 03:21 PM Re: health concern raitchjay
hmdagal Offline
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hmdagal
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Sending positive vibes your way.

In my experience, the waiting is the hardest part. Once you know, whatever the issue is, you can address it.

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#2288480 - 09/07/23 03:52 PM Re: health concern raitchjay
raitchjay Offline
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OK
Thanks everyone; i appreciate it. I'm leaving for a quick lunch and then to my appointment.
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#2288481 - 09/07/23 03:52 PM Re: health concern raitchjay
HappyGilmore Offline
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Pulling people out of the ditc...
prayers coming your way...
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#2288486 - 09/07/23 05:10 PM Re: health concern raitchjay
Rocky P Offline
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Joined: Jun 2003
Posts: 7,641
Florida
Thoughts and prayers are with you.
Hope it's a false alarm so we don't have to kick it up a notch, but we're ready.
Good Luck!
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#2288534 - 09/08/23 02:37 PM Re: health concern raitchjay
raitchjay Offline
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I guess i owe you guys an update....the news was good....

I'm at an elevated risk of Parkinson's disease, but my biopsy and MRI showed no signs of the recently discovered bio-marker for PD. So, i need to have a biopsy annually going forward, and i'm joining a trial (which is good...i think it will pay for my biopsies, and it also feels good to help fight a horrible disease, especially while i don't actually have it). Might not sound like totally great news, since i still could develop it in the future, but a few weeks ago i was convinced i was going to have it right now and that really became my goal.....hopefully never get it, yes, but if i have to get it, at least make it be in the distant future.

Thanks for all the good thoughts and prayers.
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#2288535 - 09/08/23 02:49 PM Re: health concern raitchjay
rlcarey Online
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Galveston, TX
Well, considering, that is great news. You should be commended for agreeing to be part of a clinical trial. It is a very important part of figuring out what works.
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#2288536 - 09/08/23 02:51 PM Re: health concern raitchjay
raitchjay Offline
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Thanks Randy. I'm definitely stepping a little lighter today.
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#2288538 - 09/08/23 05:29 PM Re: health concern raitchjay
waldensouth Offline
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FINALLY ABOVE the gnat line
So glad to hear that you don't have parkinson's. Hopefully, being part of this trail will help ensure you don't get it. Such good news!
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#2288544 - 09/08/23 06:11 PM Re: health concern raitchjay
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I'm very happy for you.
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#2288547 - 09/08/23 07:53 PM Re: health concern raitchjay
Purple Pride Offline
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Where I am supposed to be
Glad to hear the good news Raitchjay. Praying that you remain healthy and that the trials you are participating in help eliminate Parkinson's, or at least improve the treatments for the disease.
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#2288553 - 09/09/23 02:29 PM Re: health concern raitchjay
raitchjay Offline
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OK
Thanks again everyone.
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#2288559 - 09/11/23 03:05 PM Re: health concern raitchjay
Rocky P Offline
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Florida
WHAT FANTASTIC NEWS! (sorry for shouting).

Congratulations - Thanks for being part of the trials - it may help you and certainly will help doctors and scientists to come up with a cure. Continued thoughts and prayers. Raitchjay, celebrate with an extra few minute mental break thinking about your luck.
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#2288561 - 09/11/23 04:52 PM Re: health concern raitchjay
raitchjay Offline
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Thanks Rocky.....i have definitely spent time reflecting on my good fortune. I have, in the last 8 years, lost my brother (at age 52, to cancer), my dad, and my mom...so it was sort of extra scary contemplating that i might have this dreadful disease. I am definitely grateful.
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#2288572 - 09/11/23 08:04 PM Re: health concern raitchjay
RVFlyboy Offline
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Soaring over Georgia
Great news, Raitchjay. So happy to hear. For those that have been around for a while know that this part of the BOL threads started when my wife had a devastating health condition that nearly killed her. She has since recovered, although has a number of ongoing related issues. We have seen SO MANY answered prayers here in this little slice of BOL since. What a blessing.
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#2288575 - 09/11/23 08:24 PM Re: health concern raitchjay
raitchjay Offline
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Thank you Jim. I'm glad your wife is doing as well as she is. Life is precious.
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#2288604 - 09/12/23 06:26 PM Re: health concern raitchjay
basilring Offline
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Posts: 305
Spartan Country!
Yikes - just reading this!! Sorry you had to worry while waiting for the appointment. Glad you know what is going on - I hope the trials work for you and others. Continued prayers for your journey!
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#2288606 - 09/12/23 06:40 PM Re: health concern raitchjay
raitchjay Offline
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Thank you basilring. smile (and everyone else i didn't call out by name....i truly appreciate your concern).
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#2291148 - 11/28/23 09:13 PM Re: health concern raitchjay
burkemi Offline
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Way late to seeing this. I don't make it this far in BOL much any more. Glad for the good news. Best of luck to you and best of luck for positive trial results!!!
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#2291153 - 11/28/23 09:17 PM Re: health concern raitchjay
raitchjay Offline
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Thanks burkemi.
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#2292487 - 01/17/24 06:24 PM Re: health concern raitchjay
raitchjay Offline
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Just thought i would give an update for those who are interested:

Started the clinical trial a couple of weeks ago.....questionnaire, tests (memory, reflexes, strength, etc.) and a lot of other paperwork....then a repeat biopsy ...same one i had a few months ago. I have also been reading about a "product" (not sure that's really the right word....it's more of a cheap--$50--set of instructions, ideas) called "Parkinson's Protocol"....it talks about how medicine is great, but doesn't get to the root problem of PD--dopamine loss due to dying brain cells, and how lifestyle changes can greatly help, especially in regards to toxins that lead to inflammation.....i don't know a lot more because i haven't bought it yet (and again, i thankfully haven't been diagnosed with PD, at least not yet). If anyone is familiar with Parkinson's Protocol or have any other useful information, i'd love to hear it.
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