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#264327 - 09/15/06 12:35 AM Re: Natalie update 9-14-06
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Becca, So sorry to hear about your recent loop-de-loop. I think about you and the Bear often. I wish there was something I could do to help, but know you two are in my thoughts.
_________________________
Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.

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#264328 - 09/15/06 02:06 PM Re: Natalie update 9-14-06
deppfan Offline
Power Poster
Joined: Dec 2000
Posts: 5,184
All over the map.
Wow...I don't know how you do it Becca. Just know that we are holding you all up in our prayers. What an amazing family you are.
_________________________
On the road again.....I just can't wait to get on the road again.

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#264329 - 09/15/06 04:12 PM Re: Natalie update 9-14-06
Beagles22 Offline
Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
Becca, I know you have angels watching you, bear and your medical staff. I have faith that He will see you through all of this.
_________________________
Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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#264330 - 09/15/06 04:16 PM Re: Natalie update 9-14-06
Truffle Royale Offline

10K Club
Joined: Jul 2003
Posts: 17,406
Dear Becca,

I really hate roller coasters. Any chance we could try the tilt-a-whirl next time? You know they don't go up and down nor do they spin quite as much if you sit still in the middle. Ok, so we'll sit REAL still in this car and pray REALLY HARD for a miracle. Come on, fellow BOLers, the prayer warriors are filling up this ride and not getting off till our Bear is better!

Do you think if we gave Natalie lots of veggies the roughage could make the scar disappear?

There, at least I made you smile. Lots and lots of prayers and a big virtual ((hug)) to you and Bear.

TR

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#264331 - 09/15/06 07:53 PM Re: Natalie update 9-14-06
LoisLane Offline
Diamond Poster
LoisLane
Joined: Oct 2001
Posts: 1,570
Wisteria Lane..
I'm sending my good thoughts and prayers out to this very special young lady
_________________________
And where is Superman when I need him?

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#264332 - 09/15/06 07:59 PM Re: Natalie update 9-14-06
P*Q Offline

Power Poster
P*Q
Joined: May 2001
Posts: 8,458
Somewhere
Always praying for and thinking of you! {{{{hugs}}}}

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#264333 - 09/15/06 08:19 PM Re: Natalie update 9-14-06
wavewatcher Offline
Diamond Poster
wavewatcher
Joined: May 2003
Posts: 2,053
Hawaii
Supermom (and dad) we are still praying for you. Normal is a good thing - keep it coming.

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#264334 - 09/15/06 09:24 PM Re: Natalie update 9-14-06
Carly Girl Offline
Power Poster
Joined: Aug 2004
Posts: 3,778
TEXAS
Bless your little one MOPNB! Lifting you all up in prayers.
_________________________

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#264335 - 09/15/06 10:03 PM Re: Natalie update 9-14-06
HRH Okie Banker Offline
Power Poster
Joined: Jan 2003
Posts: 3,070
Oklahoma
Lots of thoughts and prayers for the Miss Natalie family coming from Oklahoma.
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Just working here until I get my letter from Hogwarts.

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#264336 - 09/16/06 01:04 AM Re: Natalie update 9-14-06
tahdah Offline
Platinum Poster
Joined: Apr 2005
Posts: 932
Thank you for taking time to update. As always prayers to you. I don't know how you do this. I was hospitalized early this week and thought of you. I was only in for a couple of days but I hated it. I just can't imagine how hard it is for the Bear and your family to spend at a hospital. God Bless all of you.

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#264337 - 09/18/06 01:39 PM Re: Natalie update 9-14-06
corkygirl Offline
Power Poster
Joined: Sep 2004
Posts: 4,241
middle of the country
Normal liver function, that is wonderful to hear!! It sounds like you have really great doctors and no one is giving up, what a blessing that is for you. Your little one continues to be in my prayers, and her picture from the wedding up on the wall above my desk.
_________________________
Treading water in a hurricane

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#264338 - 09/19/06 05:36 PM Re: Natalie update 9-14-06
E.E.G.B Offline
Power Poster
E.E.G.B
Joined: Jul 2002
Posts: 6,726
the sandy shore
Becca, thinking of y'all!
_________________________
I disbelieved what he was saying so hard, I probably created an alternate universe where it wasn't true.

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#264339 - 09/19/06 09:47 PM Re: Natalie update 9-14-06
QCL Offline
Power Poster
QCL
Joined: May 2002
Posts: 6,259
NW IL
Thanks all!!!
We are scheduled to take a look at the situation again October 23. So until then, I am back to the denial game while enjoying my adorable "big girl."

Her latest cute quote: When I called her my baby girl, I got "I not a baby, mommy. I a big girl. I a big girl Nannanie!"

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#264340 - 09/20/06 12:56 PM Re: Natalie update 9-14-06
thomasj Offline
Power Poster
Joined: Mar 2001
Posts: 5,063
Pennsylvania
Prayers for you guys as always Becca. Enjoy that little one, sounds like she is growing up fast!

A quote from my son when I called him Honey the other day "My name not Honey, it's Luke!!!"
_________________________
Knowledge is knowing what to say. Wisdom is knowing when to say it.

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#264341 - 10/19/06 02:31 PM Natalie update 10-19-06
QCL Offline
Power Poster
QCL
Joined: May 2002
Posts: 6,259
NW IL
This is hard...

This is a hard update to write. I've been sitting on this news for 2 days now, not saying anything. I hate taking you all on our roller coaster, really I do.

I mentioned in my last update that when we got home Tuesday I called Joan, Natalie's transplant coordinator. What I did not mention to you all was part of the conversation.

Dr. Superina (who, Natalie will tell you, "Has a hurt foot" - he just had surgery on his Achilles tendon) took a look at last week's IR study and the study from this Tuesday. Dr. Superina, the man that didn't want to give up on this liver. Dr. Superina is ready to re-transplant.

And I think that I am too.

A shunt would be too hard.

After talking to Dr. Kim (one of the IR doctors) I learned that these mush metal shunts are typically used for cancer patients to improve quality of life when there are few options left. The shunts usually fail within 6 months. Since the liver would grow around the shunt, if there was a problem with it, surgery of the liver would be necessary to remove it.

And the study from this week is showing that her bile ducts are doing very little draining on their own anymore, anyway.

From what we know now, she will most likely be re-activated on the list sometime next week.

And yet, Natalie is still reminding me that we need to "color a card for Dr. Superina. To make his foot feel better." God, I love this kid.
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www.nataliebear.com

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#264342 - 10/19/06 02:50 PM Re: Natalie update 10-19-06
Okie Dokie Offline
Platinum Poster
Okie Dokie
Joined: Mar 2003
Posts: 798
I'm so sorry that things are not going the way we all hoped they would. I will continue to pray for you and your little bear that the new transplant will be all that you need it to be. She is such a sweet girl and the stories you tell of her really brighten my day.
_________________________
Children seldom misquote. In fact, they usually repeat word for word what you shouldn't have said. ~Author Unknown

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#264343 - 10/19/06 02:47 PM Re: Natalie update 10-19-06
pjs Offline
10K Club
pjs
Joined: Aug 2004
Posts: 10,321
oHiO
Praying here and hoping things take a turn for the better.

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#264344 - 10/19/06 02:58 PM Re: Natalie update 10-19-06
cheekEE Offline
Power Poster
Joined: Jun 2005
Posts: 4,594
Easy Street
Wow...I am so sorry to hear this news. I don't know a lot about liver transplants, but I hope you find what you need quickly and she feels better quickly.
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Some days good karma isn't worth the hassle.

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#264345 - 10/19/06 02:53 PM Re: Natalie update 10-19-06
Skittles Offline
10K Club
Skittles
Joined: Sep 2002
Posts: 13,965
TN
This is devastating news for all of us and I can't phathom the feelings you have right now. I am praying constantly for your Little Bear and her parents.
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My Opinions Only

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#264346 - 10/19/06 03:13 PM Re: Natalie update 10-19-06
Cowboys Fan Offline
Power Poster
Joined: Dec 2002
Posts: 4,617
SC
Your family is always in my prayers.
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#264347 - 10/19/06 03:27 PM Re: Natalie update 10-19-06
Nanwa Offline
Power Poster
Nanwa
Joined: Oct 2001
Posts: 5,564
Clintonville, WI, USA
Here too! I think of you often. Prayers for the bear.
_________________________
Member of the National Sarcasm Society - like we need your support!

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#264348 - 10/19/06 03:52 PM Re: Natalie update 10-19-06
Busy Bee, CRCM Offline
Diamond Poster
Joined: Feb 2004
Posts: 1,089
PacificNW
So frustrating! You all will be in my prayers!

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#264349 - 10/19/06 03:57 PM Re: Natalie update 10-19-06
TTC Queen Offline
Diamond Poster
Joined: Mar 2004
Posts: 1,119
Oklahoma
Well D@mn and Double D@mn! I am so sorry for your news. I wish I could do something--even throwing something would be good, but I am at work. (What I am doing is crying out of frustration as I type this.) I am truly amazed at Natalie's personality resilience. I will continue to keep you all in my prayers.
_________________________
Blessed are the cracked, for it is they who let in the light. (Boy is it bright around me!)

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#264350 - 10/19/06 04:02 PM Re: Natalie update 10-19-06
doodles Offline
Gold Star
doodles
Joined: Jan 2004
Posts: 494
PA
Continued prayers from PA. - "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness." Lamentations 3:22-23. May you feel God's compassion fresh each morning so that you do not feel consumed by the burden that you have been carrying.

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#264351 - 10/19/06 04:28 PM Re: Natalie update 10-19-06
*BUSTER* Offline
Power Poster
*BUSTER*
Joined: Nov 2005
Posts: 5,112
In hades.
MOPN, you arn't the only one who loves the Bear, everyone who has read this thread has been touched by her in some way.
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Gun nut who enjoys doughnuts!!!


I never finish anyth

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