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#263802 - 05/20/05 10:04 PM Re: Keep us in your prayers
QCL Offline
Power Poster
QCL
Joined: May 2002
Posts: 6,259
NW IL
Quote:

The Bear is going to grow up to be an amazing woman! Who know, maybe she'll be President...can I design her inaugural gown?




You bet!!!

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#263803 - 05/24/05 04:05 PM Re: Keep us in your prayers
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
The Bear was admitted to Children's Memorial last night because her hemoglobin level was quite low. She had a blood transfusion and they're hoping to see the hemotologist today rather than having to wait for their appointment on Thursday. Other than the low hemoglobin, she's still doing well.

Please keep mom & dad in your prayers (and of course Natalie!) We pray for comfort & patience for them, and for the doctors to figure out what is causing the hemoglobin level drops and to quickly determine what the course of action is.
_________________________
Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263804 - 05/24/05 04:10 PM Re: Keep us in your prayers
Beagles22 Offline
Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
I am already praying for our little bear, as well as her parents and family. Thank god we know she is a fighter with very good doctors.
_________________________
Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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#263805 - 05/24/05 04:24 PM Re: Keep us in your prayers
Angel Eyes Offline
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Angel Eyes
Joined: May 2001
Posts: 4,599
Gosh, I know they are all strong...and have lots of prayers coming their way, but how much more of this roller coaster can they take?
Best of Luck Natalie, Mom and Dad! Stay stong, you have a lot of people pulling for you. We are sending more prayers your way

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#263806 - 05/24/05 05:16 PM Re: Keep us in your prayers
Patsy Cline Offline
Diamond Poster
Patsy Cline
Joined: Sep 2002
Posts: 1,117
On the road...
Oh my goodness! I pray for their continued strength and patience. It the face of their ups and downs it forces me to see that what I have believed to be my life's problems or chalenges are really nothing at all.
_________________________
Michelle CRCM

"What would you attempt to do if you knew you could not fail?" ~ unknown


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#263807 - 05/25/05 12:01 AM Re: Keep us in your prayers
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Look out Becca, here come the hugs again. Hope we don't squeeze too tight.
_________________________
Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.

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#263808 - 05/25/05 01:44 AM Re: Keep us in your prayers
HRH Dawnie Offline
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HRH Dawnie
Joined: Aug 2002
Posts: 7,353
Anchorage Alaska
If KC's hug does not do you in, here comes mine. Becca we love ya hun. We're there in spirit if not body. God will guard our little bear I just know he will!!!
_________________________
Dawn Coursey VP/CRA Queen

CRA Rating is in...Oh who cares...I'm home with the baby.

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#263809 - 05/25/05 02:18 AM Re: Keep us in your prayers
Truffle Royale Offline

10K Club
Joined: Jul 2003
Posts: 17,404
ok, I'm next, move over Dawnie!!! I'm here to hug the remaining stuffins out of you, Becca. Know that we're here, still praying and thinking healing thoughts. Much love as always to our bear too.

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#263810 - 05/25/05 12:31 PM Re: Keep us in your prayers
P*Q Offline

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P*Q
Joined: May 2001
Posts: 8,458
Somewhere
Big hugs headed your way from Mass too! Still praying and hug the bear for all of us too.

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#263811 - 05/25/05 02:11 PM Re: Keep us in your prayers
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Thanks all.
We are home. For now. I wish I had more good news to tell you. But for now we're are going to wait for the powers that be in the hospital to decide what the next step is.

However, the bear does have a new den (webpage) to call home. Give me a bit and I'll add to my profile. And there is a picture of the bear with her mommy - however the picture was taken 3 days after the transplant surgery - so I'm not looking my bestest.

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#263812 - 05/25/05 02:14 PM Re: Keep us in your prayers
Kansayaku Offline
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Joined: Jan 2003
Posts: 1,454
metsuretsu
Quote:

And there is a picture of the bear with her mommy - however the picture was taken 3 days after the transplant surgery - so I'm not looking my bestest.




The new webpage is great and you both look like the angels that you are.

Let your faith guide you and the comfort of the father give you strength.
_________________________
I have many opinions; some are good, some are bad, and some don't contradict.

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#263813 - 05/25/05 05:21 PM Re: UPDATE
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Here's the email that I just got. With commentary by me in {}. Don't worry if you don't understand all the medical speak - it's taken me 19 months.

I love our nurse...

"US {ultrasound} again showed persistent portal vein (PV) stenosis with evidence of increasing spleen size. When we found this before, she was not having any of the symptoms that she is now, so we decided, with input from the surgery team, to monitor it. Well now that she is having symptoms - low blood counts, increasing spleen size- we’re most likely going to need to do a portal vein venogram, by your special friends in Interventional Radiology {he knows how well IR and I get along - detect the sarcasm here?}. Basically they would put a catheter in her PV with a balloon to angioplasty the narrowing- much like they do in coronary artery disease. They could measure the pressure of the blood flow in the PV before and after the procedure to ensure that they did a good job. Then we would watch her closely (with serial US) for recurrence of this problem. If it came back, she may require a indwelling mesh stent- not like the one she has now in her bile duct. Dr. Whitington wanted to wait for the hematology testing to come back, first, and have Dr Alonso go over all this stuff too. For now, I will send a repeat CBC on Thursday- to look for sudden drop of hemoglobin and then weekly on Mondays. I called home care with those instructions. Hematology will be following her closely as well. Argh. {When I read it I try to sound like a pirate - it makes me smile more. }"

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#263814 - 05/25/05 05:40 PM Re: UPDATE
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Becca, I don't know what I can say that hasn't already been said. Just know that I am thinking about you, Jason and NatBear. I will have to look for some additional ways to make you smile.
_________________________
Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.

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#263815 - 05/25/05 05:51 PM Re: UPDATE
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
I was too busy to look at the BOL Couch yesterday much and I missed your posts. I am so sorry to hear that the ups and downs continue for you guys. Lots of hugs coming your way with prayers to support you. Give that little one a kiss for me.
_________________________
Treading water in a hurricane

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#263816 - 05/25/05 07:41 PM Re: UPDATE
TTC Queen Offline
Diamond Poster
Joined: Mar 2004
Posts: 1,119
Oklahoma
More prayers and hugs coming from the Texan who lives in Oklahoma.
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Blessed are the cracked, for it is they who let in the light. (Boy is it bright around me!)

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#263817 - 05/25/05 08:25 PM Re: UPDATE
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Can I vent a little more? The car broke down while I was on my lunch break. I went to the babysitter's house to give the bear her IV meds and then poof it wouldn't start. It's all covered under warranty and everything is going to work out ...but Argh (said like a pirate) I need a vacation!!!!!

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#263818 - 05/25/05 09:21 PM Re: UPDATE
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
Quote:

I need a vacation!!!!!




I hear Minneapolis is quite nice this time of year
_________________________
Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263819 - 05/25/05 09:26 PM Re: UPDATE
Truffle Royale Offline

10K Club
Joined: Jul 2003
Posts: 17,404
And Madison is a nice half-way stop on the way!

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#263820 - 05/26/05 04:53 AM Re: UPDATE
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Calgon, take me away.
_________________________
Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.

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#263821 - 05/26/05 10:42 AM Re: UPDATE
E.E.G.B Offline
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E.E.G.B
Joined: Jul 2002
Posts: 6,726
the sandy shore
OTOH, it's SUMMER in Dallas already...... AND we have the best Mexican food.
_________________________
I disbelieved what he was saying so hard, I probably created an alternate universe where it wasn't true.

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#263822 - 05/26/05 01:46 PM Re: UPDATE
Bengals Fan Offline
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Bengals Fan
Joined: Apr 2004
Posts: 8,990
Cincinnati, OH
Cincinnati is having Taste of Cincinnati this weekend, and they are opening the new Wolf Woods at the Cincinnati Zoo too... Plus, we have Cincinnati Chili!

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#263823 - 05/26/05 01:48 PM Re: UPDATE
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
Cincinnati Chili - mmmm ... good stuff!!
_________________________
Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263824 - 05/26/05 02:32 PM Re: UPDATE
Countess Kiwi Offline
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Joined: Jun 2002
Posts: 1,815
Minnesota
It has been nice and sunny here in Twin. No humidity and little to no mosquitos and I haven't noticed too many fly's yet...sounds good, doesn't it.
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Do what you can, with what you have, where you are.
~Theodore Roosevelt~

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#263825 - 05/26/05 07:15 PM Re: UPDATE
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Well, I did get a mini-vacation today. The bear woke up with a slight fever and vomiting (mmm...sorry if anyone just ate). And she was kind enough to share this bug with me. So today her and I are cuddling on the couch watching Star Wars Episode II.

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#263826 - 05/26/05 10:26 PM Re: UPDATE
Bones Offline
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Bones
Joined: Nov 2003
Posts: 3,020
Land of Enchantment
The cuddling sounds nice! Prayers and hugs from New Mexico.
_________________________
You need an attitude adjustment ---- let me get my tools!

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