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#263502 - 02/22/05 03:05 PM Re: Natalie's doing better
deppfan Offline
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Joined: Dec 2000
Posts: 5,184
All over the map.
Thank you for the update. We are still praying for them.
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#263503 - 02/22/05 03:08 PM Re: Natalie's doing better
Bones Offline
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Bones
Joined: Nov 2003
Posts: 3,020
Land of Enchantment
I am so happy things are going well. Continued prayers for Natalie.
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#263504 - 02/22/05 07:27 PM Re: Natalie's doing better
HRH Dawnie Offline
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HRH Dawnie
Joined: Aug 2002
Posts: 7,353
Anchorage Alaska
Becca I'm so happy to continue to hear this great news. Thank's for sharing your personal journey with us. It's a wonderful thing to in a very small way share a part of this lovely child's recovery! We're praying for you and Natalie again today, hoping that all goes well in surgery with the closing!
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CRA Rating is in...Oh who cares...I'm home with the baby.

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#263505 - 02/22/05 10:49 PM Re: Natalie's doing better
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Today, 2 kids here at the hospital received livers!!! But that means that Natalie's surgery to close her up scheduled for today was bumped to tomorrow.

Currently she is at IR (interventional radiology) to get a new PICC line put in. Her direct line (at her neck) started coming out and the site appears to be infected. Ick! This shouldn't be a huge problem though, since she's on enough antibiotics to cure a HORSE.

She is doing GREAT!!! Her liver numbers look AWESOME!!! She loves playing with the "My little pony's" that her mom got her (in Happy Meals from McD's). It is so cute. She is wearing immobilizers on her arms, so her arms are stuck in a straight position. So she is just passing her ponyies back and forth between her hands. Poor kid.

I'm doing quite well. My incision feels good and is healing up fast.

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#263506 - 02/22/05 11:04 PM Re: Natalie's doing better
Cowboys Fan Offline
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Posts: 4,617
SC
So nice to hear good news. Prayers and good thoughts continue to come your way.
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#263507 - 02/22/05 11:08 PM Re: Natalie's doing better
deppfan Offline
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All over the map.
Goosebumps ...How wonderful!
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#263508 - 02/22/05 11:11 PM Re: Natalie's doing better
Truffle Royale Offline

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Joined: Jul 2003
Posts: 17,403
Quote:

Goosebumps ...How wonderful!




me too!!! Still praying for a speedy complete recovery followed by glorious pictures from a second birthday party!

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#263509 - 02/22/05 11:20 PM Re: Natalie's doing better
Anonymous
Unregistered

Quote:

Quote:

Goosebumps ...How wonderful!




me too!!! Still praying for a speedy complete recovery followed by glorious pictures from a second birthday party!




Me "three", what wonderful, exciting news!!

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#263510 - 02/23/05 01:25 PM Re: Natalie's doing better
Retired DQ Offline
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Turnpike Exit 10
That's awesome, Becca. Glad to hear it.
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#263511 - 02/23/05 01:49 PM Re: Natalie's doing better
Cat Woman Offline
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New England
That's great news!! Keep it coming!

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#263512 - 02/23/05 03:13 PM Re: Natalie's doing better
Okie Dokie Offline
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Okie Dokie
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Posts: 798
Wonderful news!!!! We are all so excited for you guys.
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#263513 - 02/23/05 04:06 PM Re: Natalie's doing better
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Wednesday, February 23, 2005 9:27 AM CST

Natalie had another good night last night. She got a new PICC line in her femoral artery yesterday. They then removed the PICC line in her arm and the Artery line in her hand. So she's left with a subclavian line (in her chest) and a femoral line.

The surgeons were busy yesterday, they finished up with the second transplant around 2am today. It looks like Natalie's surgery to close her will be around 1pm today.

Prayers are appreciated.

BTW, they have done 9, that's right 9 transplants in the last 2 weeks (beginning with us)!!! 9 little lives have been saved. How wonderful.

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#263514 - 02/23/05 04:12 PM Re: Natalie's doing better
Anonymous
Unregistered

What wonderful news!

Still praying for you and the Bear.

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#263515 - 02/23/05 05:11 PM Re: Natalie's doing better
RR Joker Offline
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Posts: 20,656
The Swamp
Great news for all!!!
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#263516 - 02/23/05 05:26 PM Re: Natalie's doing better
corkygirl Offline
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Posts: 4,241
middle of the country
Wonderful news!!! Continued thoughts and prayers for all of you
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#263517 - 02/23/05 06:10 PM Re: Natalie's doing better
Princess Leia Offline
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Joined: Jun 2004
Posts: 1,975
Alderaan
So great to know you're both doing well. Prayers that today's surgery is swift and without complications.
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#263518 - 02/23/05 06:51 PM Re: Natalie's doing better
HRH Dawnie Offline
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Posts: 7,353
Anchorage Alaska
Thanks for the update Becca. Nine lives! How wonderful is that news in the midst of all the other bad news we hear daily!
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CRA Rating is in...Oh who cares...I'm home with the baby.

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#263519 - 02/23/05 08:56 PM Re: Natalie's doing better
deppfan Offline
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Posts: 5,184
All over the map.
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On the road again.....I just can't wait to get on the road again.

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#263520 - 02/24/05 12:48 AM Re: Natalie's doing better
Truffle Royale Offline

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Nine?!!! If that doesn't get everyone of us to make sure everything that can be donated is, I don't know what will!

More prayers for you, the bear and the other 8 little ones.

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#263521 - 02/25/05 08:24 PM Re: Update
QCL Offline
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QCL
Joined: May 2002
Posts: 6,259
NW IL
Friday, February 25, 2005 1:18 PM CST

Natalie's liver numbers continue to improve, slowly. She is still on the vent.

Every morning she has an X-Ray to look at her lungs. Today's X-ray looked "wet." The theory is that after closing her up, more pressure is being put on her lungs and she's not able to take deep breaths (this is not uncommon). So they are giving her a little lasix (diuretic) to help get rid of the excess fluid.

Also, this morning they stopped her feeds. She hadn't had a poopy diaper in 2 days. And her tummy was getting bigger as things "backed up." An hour after they took her food away she gave her nurse a poopy diaper - that'll show them.

At this point we're not going forward, but we're not moving back either. It's frustrating.

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#263522 - 02/25/05 08:36 PM Re: Update
deppfan Offline
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Posts: 5,184
All over the map.
"Come unto Me, all ye that labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. For My yoke is easy and My burden is light." Matthew 11:28-30.

Hold on and keep the faith, Becca. You are strong and I'm betting on Natalie to come through like the trooper she is. Lots of prayers still coming your way.
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#263523 - 02/25/05 09:24 PM Re: Update
Princess Leia Offline
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Joined: Jun 2004
Posts: 1,975
Alderaan
Quote:

"Come unto Me, all ye that labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. For My yoke is easy and My burden is light." Matthew 11:28-30.





Nicole C. Mullen has a beautiful song called "Come Unto Me" on her Talk About It CD based on this passage.
It's one of my favorites (the whole CD is great).

Are you looking for someone to be gentle
With your broken heart your shattered dreams
And are you searching for someone who'll be faithful
To you no matter what life brings

Well I know the maker of the storm the sunrise
He is both the lion and the lamb
He is strong enough to shake all earth and heaven
Yet meek enough to take me as I am.

He says come unto to me
All who are weary
And I will give you rest

Bring what hurts
Bring your scars
Bring the load that you carry
And I will give you rest

Are the clouds above your head oo so heavy
Bursting with showers of despair
And do you struggle under more then you can carry
Has life given more then you can bear

And would you like to trade your failures in for victories
Like piles of ashes in from piles of gold
And can you fall down like a child who is helpless
So he can pick you up and make you whole

He says come unto to me
All who are weary
And I will give you rest

Bring what hurts
Bring your scars
Bring the load that you carry
and I will give you rest

He says come unto to me
All who are weary
And I will give you rest

Bring what hurts
Bring your scars
Bring the load that you carry
And I will give you rest


Becca, we're all still praying for you, Jason and the "Bear". A priest once told me that no where in the Bible does it say the Lord would take away our pain. It mearly says He will walk along with us and carry us through.

Heavenly Father, please place your healing hands on little Natalie and provide the comfort that her mom & dad are seeking. Help them to feel you love and support when they reach out to you. We know you are here and we thank you.

We lift them up to you.
In Your name,
Amen
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263524 - 02/25/05 09:33 PM Re: Update
deppfan Offline
Power Poster
Joined: Dec 2000
Posts: 5,184
All over the map.
AMEN
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On the road again.....I just can't wait to get on the road again.

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#263525 - 02/25/05 11:37 PM Re: Update
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
Thanks for the update, Natalie has been in my thoughts these last few days. Keep on truckin!!!
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Treading water in a hurricane

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#263526 - 02/26/05 10:37 AM Re: Update
Citrus Offline
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Joined: Jul 2003
Posts: 1,139
Still prayin' out here in California!

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