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#263827 - 05/27/05 02:59 AM Re: UPDATE
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Quote:

Cincinnati is having Taste of Cincinnati this weekend, and they are opening the new Wolf Woods at the Cincinnati Zoo too... Plus, we have Cincinnati Chili!




they were actually talking about the Chili on NPR this evening.

Becca, sorry you got a bug, but glad you got some down time.
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#263828 - 05/27/05 01:52 PM Re: UPDATE
Bengals Fan Offline
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Bengals Fan
Joined: Apr 2004
Posts: 8,990
Cincinnati, OH
They were talking about Cincy Chili in KC? Cool.

By the way, if you come, go to Camp Washington Chili or Price Hill Chili. Don't fall for the "Skyline" or "Goldstar" mass produced stuff

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#263829 - 05/27/05 09:16 PM Re: UPDATE
CRAatBOK Offline

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Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Actually it was a national show that was on in KC. I think it is called "The next Best Thing" It is on Thurs. nights here.
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#263830 - 05/31/05 03:28 PM Re: Calling all prayer warriors...
QCL Offline

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QCL
Joined: May 2002
Posts: 6,259
NW IL
I really need you guys right now...

On top of everything else...a test for EBV just came back positive. This can lead to PTLD and her trans. team mentioned it today for the first time (which caused much shock to me). We are scheduling a CT scan for this week and will be doing the portal vein angioplasty on Friday.

~Definition from CLASSKIDS.org:
PTLD stands for post transplant lymphoproliferative disease. This is a problem that occurs in transplant patients and is believed to be caused by an interaction between immunosuppression medications and a chronic viral infection called EBV (Epstein Barr Virus). PTLD occurs in a small percentage of transplanted patients and can progress to lymphoma, a cancer of the blood cells . PTLD can sometimes be treated by decreasing or stopping the immunosuppression medications.

But on a side note - Natalie (good girl that she is ) pulled her PICC line out (Saturday)!! This was the last day of the meds and she got all of her doses for the day, so she pulled it (how she knew that it was the last day is beyond me). She had a pretty good weekend, but shes quite moody (well see what the labs show I guess), shes also not sleeping well, but Im trying not to get myself all worked up.
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#263831 - 05/31/05 03:32 PM Re: Calling all prayer warriors...
TTC Queen Offline
Diamond Poster
Joined: Mar 2004
Posts: 1,119
Oklahoma
Your family is in my prayers.
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Blessed are the cracked, for it is they who let in the light. (Boy is it bright around me!)

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#263832 - 05/31/05 03:40 PM Re: Calling all prayer warriors...
DeeQ Offline
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DeeQ
Joined: Dec 2002
Posts: 40,760
Turnpike Exit 10
Continuous in my thoughts as well.
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Get your facts first, then you can distort them as you please. - Mark Twain

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#263833 - 05/31/05 03:46 PM Re: Calling all prayer warriors...
Princess Leia Offline
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Joined: Jun 2004
Posts: 1,975
Alderaan
What can I say to take away your pain? I think we all have the same feeling of helplessness. Sending lots of prayers and virtual hugs.
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#263834 - 05/31/05 03:46 PM Re: Calling all prayer warriors...
Angel Eyes Offline
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Angel Eyes
Joined: May 2001
Posts: 4,599
Oh my....we are definitly going to say extra prayers for Natalie and her family! Hang in there

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#263835 - 05/31/05 03:56 PM Re: Calling all prayer warriors...
Bengals Fan Offline
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Bengals Fan
Joined: Apr 2004
Posts: 8,990
Cincinnati, OH
And just when I thought I could stop praying for that sweet little angel.... You're back on top my prayer list!

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#263836 - 05/31/05 04:04 PM Re: Calling all prayer warriors...
Bones Offline
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Bones
Joined: Nov 2003
Posts: 3,020
Land of Enchantment
Prayers still coming your way.
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#263837 - 05/31/05 04:09 PM Re: Calling all prayer warriors...
Busy Bee, CRCM Offline
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Joined: Feb 2004
Posts: 1,089
PacificNW
I said a prayer for you, your husband, Natalie, and the medical staff just as I finished reading your latest post.

Hang in there!

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#263838 - 05/31/05 04:27 PM Re: Calling all prayer warriors...
P*Q Offline

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P*Q
Joined: May 2001
Posts: 8,439
Somewhere
Continues prayers Becca.

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#263839 - 05/31/05 04:37 PM Re: Calling all prayer warriors...
VioletRose Offline
100 Club
VioletRose
Joined: Jul 2004
Posts: 195
Land Of The Lost
Praying for you, thinking of you and knowing you will get through this.

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#263840 - 05/31/05 05:00 PM Re: Calling all prayer warriors...
someone else Offline
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someone else
Joined: Aug 2004
Posts: 3,300
back to my roots
You will be in my thoughts and in my heart. She is a tough little girl and so are you. Hang in there!
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Somewhere, something incredible is waiting to be known. - Carl Sagan

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#263841 - 05/31/05 05:01 PM Re: Calling all prayer warriors...
Happy Birthday Beagles22 Offline
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Joined: Jan 2004
Posts: 3,626
State of confusion
Praying for all of you in this time of need. I am sending virtual hugs to you and yours and thinking of you often!!

OOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
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#263842 - 05/31/05 05:30 PM Re: Calling all prayer warriors...
deppfan Offline
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Joined: Dec 2000
Posts: 5,184
All over the map.
You, Jason, and Natalie are in my thoughts and prayers. I also pray for all medical personnel who have anything to do with you all. Hang tough Becca. As Carman says..."It may seem like Friday night, but Sunday's on the way!"
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On the road again.....I just can't wait to get on the road again.

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#263843 - 05/31/05 05:39 PM Re: Calling all prayer warriors...
Countess Kiwi Offline
Diamond Poster
Joined: Jun 2002
Posts: 1,815
Minnesota
Continued prayers for your family and all that are involved. Hang in there, we are all here for you whenever you need to talk (type )
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Do what you can, with what you have, where you are.
~Theodore Roosevelt~

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#263844 - 05/31/05 06:18 PM Re: Calling all prayer warriors...
Skittles Offline
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Skittles
Joined: Sep 2002
Posts: 13,963
TN
Prayers are coming from Georgia also.
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#263845 - 05/31/05 07:03 PM Re: Calling all prayer warriors...
Princess Romeo Offline

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Princess Romeo
Joined: Jun 2001
Posts: 8,272
Where the heart is
Becca and Natalie - You are in my prayers also. May G-d's all powerful Love shine upon both of you and bring you strength and well-being.
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CRCM,CAMS
Regulations are a poor substitute for ethics.
Just sayin'

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#263846 - 05/31/05 08:39 PM Re: Calling all prayer warriors...
Okie Dokie Offline
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Okie Dokie
Joined: Mar 2003
Posts: 798
Continued prayers from me as well.
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Children seldom misquote. In fact, they usually repeat word for word what you shouldn't have said. ~Author Unknown

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#263847 - 05/31/05 08:45 PM Re: Calling all prayer warriors...
waldensouth Offline
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waldensouth
Joined: Nov 2001
Posts: 7,974
FINALLY ABOVE the gnat line
Continued prayers coming your way!
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- Frederick Douglass




My Opinion Only.

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#263848 - 05/31/05 11:20 PM Re: Calling all prayer warriors...
CRAatBOK Offline

Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Becca, wish I could say or do something to make your pain and angst go away, but I can't. Just know that I am thinking of you and Bear.
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Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.

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#263849 - 06/01/05 12:38 AM Re: Calling all prayer warriors...
Truffle Royale Offline

10K Club
Joined: Jul 2003
Posts: 17,292
Things happen in threes for me...I've gotten two biggies answered by praying recently. I'm making the bear's recovery with NO sign of PTLD or any other alphabet soup problem my number three.

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#263850 - 06/01/05 03:04 AM Re: Calling all prayer warriors...
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
I wish I could do anything that would make everything better RIGHT NOW!!! All I can do is let you know that I care and that you are all in my thoughts. Hugs your way
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Treading water in a hurricane

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#263851 - 06/01/05 12:49 PM Re: Calling all prayer warriors...
RR Joker Offline
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RR Joker
Joined: Nov 2002
Posts: 20,644
The Swamp
What a tough, rough road you all have been traveling. I pray your trail will smooth out for each of you very soon. Thoughts and prayers continue from Georgia.
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Say you'll haunt me - Stone Sour

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