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#263852 - 06/01/05 01:05 PM Re: Calling all prayer warriors...
Princess Leia Offline
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Joined: Jun 2004
Posts: 1,975
Alderaan
Bear Mom - I hope you have a better day today. Always in my prayers - Leia
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263853 - 06/01/05 01:54 PM Re: Calling all prayer warriors...
QCL Offline

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QCL
Joined: May 2002
Posts: 6,259
NW IL
We're going to be admitted again - to the housepillow (that's how my cousin's son thought hospital was spelled when he sent us a card) - hemoglobin down to 4.5! She needs another transfusion . We'll probably also do the portal vein angioplasty while we are there.
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#263854 - 06/01/05 02:55 PM Re: Calling all prayer warriors...
Beagles22 Offline
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Joined: Jan 2004
Posts: 3,626
State of confusion
May His strength and power be with you today!!! I am praying for you and your little bear Becca!!!
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Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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#263855 - 06/01/05 02:58 PM Re: Calling all prayer warriors...
Quadspapa Offline
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Quadspapa
Joined: Aug 2002
Posts: 3,275
Quadrupletville, Texas
You have my prayers for you Natalie and Becca.
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"I don''t make jokes. I just watch the government and report the facts." - - Will Rogers (still relevant today)

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#263856 - 06/01/05 08:56 PM Re: Calling all prayer warriors...
Silent Valley Offline
Member
Joined: Mar 2004
Posts: 64
Texas
Prayers from South Texas for the whole family.
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#263857 - 06/02/05 03:33 PM Re: Calling all prayer warriors...
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
New post on Natalie's new webpage www.nataliebear.com (if you haven't checked it out - do so ... there are so many cute pictures of the Bear!)

Thursday, June 02, 2005 09:13 AM CDT

We are back in the hospital. Natalie got a transfusion last night. Her hemoglobin was down to 4.5. (Below 10 they will usually do a transfusion, but before transplant Natalie usually hovered around the 10 mark.)

We are going for a CT (Cat) Scan later this morning and will most likely do the Portal Vein Angioplasty tomorrow. We were supposed to do the CAT scan yesterday, but it was more important that she got the blood transfusion than the CT scan.

I'll post again, when I know more. We'll be here awhile - at least until we figure out what is going on with her.

It sounds like they'll be there for awhile. If you'd like to send The Bears an e-card, here is the Link. Hopefully, they'll have some answers soon.
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263858 - 06/02/05 04:21 PM Re: Calling all prayer warriors...
Bengals Fan Offline
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Bengals Fan
Joined: Apr 2004
Posts: 8,990
Cincinnati, OH
Princess,

Do you have a room number?

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#263859 - 06/02/05 05:38 PM Re: Calling all prayer warriors...
Anonymous
Unregistered

Quote:

Princess,

Do you have a room number?




It's on the web-site.

VR

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#263860 - 06/02/05 07:09 PM Re: Calling all prayer warriors...
Princess Leia Offline
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Joined: Jun 2004
Posts: 1,975
Alderaan
Sorry, my bad ... anon is right, it's on the website - room 609.
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263861 - 06/03/05 01:55 PM Re: Calling all prayer warriors...
Beagles22 Offline
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Joined: Jan 2004
Posts: 3,626
State of confusion
I love the new pictures, she is the most adorable little girl!! Still praying for you, stay strong!
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Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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#263862 - 06/03/05 04:12 PM Re: Calling all prayer warriors...
QCL Offline

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QCL
Joined: May 2002
Posts: 6,259
NW IL
Hey all!
Here's an update....and it's not an especially good one.

CT scan showed that her lymph nodes are indeed larger than they should be. So in our discussions with the doctors, it was decided that they would go forward like this is PTLD in the early stages. This makes sense.

Jason came up with a good explanation, EBV is attacking the bone marrow, which produces hemoglobin - hence the low low low hemoglobin numbers. Tha plan of attack is to gradually DECREASE immuno-suppression drugs, to allow the body to fight the EBV/ PTLD. Right now she's in a procedure to take a portion of her bone marrow to get a better idea of what to do and to see how severe the PTLD is.

Say lots of prayers for our little fighter.
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#263863 - 06/03/05 04:33 PM Re: Calling all prayer warriors...
someone else Offline
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someone else
Joined: Aug 2004
Posts: 3,300
back to my roots
She will be in my heart, as will you and your husband. Hang in there...
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Somewhere, something incredible is waiting to be known. - Carl Sagan

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#263864 - 06/03/05 05:09 PM Re: Calling all prayer warriors...
deppfan Offline
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Joined: Dec 2000
Posts: 5,184
All over the map.
Lots and lots of prayers coming your way. Hang on Becca and Jason. May God Bless and keep you all.
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On the road again.....I just can't wait to get on the road again.

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#263865 - 06/03/05 08:34 PM Re: Calling all prayer warriors...
Patsy Cline Offline
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Patsy Cline
Joined: Sep 2002
Posts: 1,117
On the road...
Continued prayers for your little fighter!
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"What would you attempt to do if you knew you could not fail?" ~ unknown


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#263866 - 06/03/05 10:41 PM Re: Calling all prayer warriors...
CRAatBOK Offline

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Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
Adorable picture. Hope she is getting lots of cards to look at.
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#263867 - 06/04/05 10:21 PM Re: Calling all prayer warriors...
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
Pulled up Natalie's website today and just had to call my hubbie in to look, what a wonderful picture of your little fighter!!
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Treading water in a hurricane

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#263868 - 06/05/05 03:46 PM Re: Calling all prayer warriors...
QCL Offline

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QCL
Joined: May 2002
Posts: 6,259
NW IL
Hey all...taking a little break in the computer area...
if you do send cards (and for those that have - THANKS) please make sure to use Natalie's last name: Natalie K. Some people have put Nataliebear (which is just fine with us) but confusing for the poor volunteers.
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#263869 - 06/05/05 07:04 PM Re: Calling all prayer warriors...
Truffle Royale Offline

10K Club
Joined: Jul 2003
Posts: 17,293
Hey, Becca! How's our bear today? And how are you and hubby holding up? Hope you at least get a chance to use the sunroom at the hospital to soak up some of those healing rays. It looks like summer is finally coming to the Midwest. Continued prayers and hugs.

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#263870 - 06/08/05 02:07 PM Re: Calling all prayer warriors...
Princess Leia Offline
Diamond Poster
Joined: Jun 2004
Posts: 1,975
Alderaan
Please keep the bears in your prayers today as Natalie undergoes surgery. Here is today's post on her Website :

Wednesday, June 08, 2005 07:47 AM CDT

Today is the day..for the lymph node tissue biopsy.

It is a fairly easy surgery, but it is just that, a surgery. We had 2 of Dr. Superina's residents come and talk to us yesterday. They will go in around her right lung and take a sample of a lymph node near that (since that was the most enlarged one on the CT scan).

Natalie is scheduled to be 2nd case (10 am). But last night was running a fever of 39 C (102.2 F) and her hemoglobin this morning was 5.2. So we'll see what these 2 new factors will play in her surgery's scheduling.

Her doctors let us know that her liver numbers look GREAT!!!
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Duct tape is like the force: It has a light side and a dark side and it holds the universe together.

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#263871 - 06/09/05 12:50 AM Re: Calling all prayer warriors...
Princess Romeo Offline

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Princess Romeo
Joined: Jun 2001
Posts: 8,272
Where the heart is
Continued prayers for G-d's perfection to shine through Becca and illuminate the pefectness of her being.
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CRCM,CAMS
Regulations are a poor substitute for ethics.
Just sayin'

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#263872 - 06/09/05 01:43 PM Re: Calling all prayer warriors...
deppfan Offline
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Joined: Dec 2000
Posts: 5,184
All over the map.
Still praying for you guys!
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On the road again.....I just can't wait to get on the road again.

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#263873 - 06/09/05 03:43 PM Re: Calling all prayer warriors...
Okie Dokie Offline
Platinum Poster
Okie Dokie
Joined: Mar 2003
Posts: 798
Quote:

Still praying for you guys!




Me too.
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#263874 - 06/09/05 03:56 PM Re: Calling all prayer warriors...
Busy Bee, CRCM Offline
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Joined: Feb 2004
Posts: 1,089
PacificNW
I'm also praying for your family! I showed my son the pictures of sweet Natalie and he's praying too (he's only 7!)

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#263875 - 06/09/05 05:58 PM Re: Calling all prayer warriors...
Beagles22 Offline
Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
I too have shared the beautiful photos with a couple of my co-workers and asked for their prayers. They have been added! What a wonderful family you have!! All my hopes and dreams for Natalie and your family coming your way!!
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Going to church doesn't make you a christian any more that standing in your garage makes you a car.

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#263876 - 06/10/05 01:30 PM Re: Calling all prayer warriors...
corkygirl Offline
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Joined: Sep 2004
Posts: 4,241
middle of the country
As always, Natalie is in my prayers. I hope the surgery went well, she is such a fighter.
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Treading water in a hurricane

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