My 4 year old niece will be going back to a clinic in Cincinnati on the 6th of November to see if there is a treatment they can do for her venous malformations. Izzy has had this problem since birth, but as many of you know, she was also born with a birth injury that made her left arm unusuable. After much therapy and two surgeries, her arm is now fine and they are focusing on her other issue.
I am including a link to a website that describes her problem. This was something else I had never heard of (like Erbs Palsy) until she was born.
Link Here Thanks for any thoughts or prayers you can send her way.