chILD awareness month

Posted By: NotDoneYet

chILD awareness month - 02/22/17 03:19 PM

My sweet grandson was diagnosed with NEHI in November at 4 months old. NEHI is a rare Interstitial Lung Disease. He is on oxygen 24/7, but we are hopeful he can outgrow needing it, if he can gain more weight. Since he takes about 80 breaths a minute, which uses up a lot of calories, he hasn't reached 15 pounds yet. But you won't find a happier little guy when he is feeling well.

Check out the chILD-Foundation website for more info on these little ones and their fund raising efforts for research.
Posted By: HRH Okie Banker

Re: chILD awareness month - 02/23/17 06:59 PM

Sending many prayers for your grandson that he grows out of this. Poor thing!
Posted By: RR Joker

Re: chILD awareness month - 02/23/17 08:38 PM

How very scary! I'm with Okie..sending happy growing up and out of it thoughts!