Becca, So sorry to hear about your recent loop-de-loop. I think about you and the Bear often. I wish there was something I could do to help, but know you two are in my thoughts.

Wow...I don't know how you do it Becca. Just know that we are holding you all up in our prayers. What an amazing family you are.

Becca, I know you have angels watching you, bear and your medical staff. I have faith that He will see you through all of this.

Dear Becca,

I really hate roller coasters. Any chance we could try the tilt-a-whirl next time? You know they don't go up and down nor do they spin quite as much if you sit still in the middle. Ok, so we'll sit REAL still in this car and pray REALLY HARD for a miracle. Come on, fellow BOLers, the prayer warriors are filling up this ride and not getting off till our Bear is better!

Do you think if we gave Natalie lots of veggies the roughage could make the scar disappear?

There, at least I made you smile. Lots and lots of prayers and a big virtual ((hug)) to you and Bear.

TR

I'm sending my good thoughts and prayers out to this very special young lady

Always praying for and thinking of you! {{{{hugs}}}}

Supermom (and dad) we are still praying for you. Normal is a good thing - keep it coming.

Bless your little one MOPNB! Lifting you all up in prayers.

Lots of thoughts and prayers for the Miss Natalie family coming from Oklahoma.

Thank you for taking time to update. As always prayers to you. I don't know how you do this. I was hospitalized early this week and thought of you. I was only in for a couple of days but I hated it. I just can't imagine how hard it is for the Bear and your family to spend at a hospital. God Bless all of you.

Normal liver function, that is wonderful to hear!! It sounds like you have really great doctors and no one is giving up, what a blessing that is for you. Your little one continues to be in my prayers, and her picture from the wedding up on the wall above my desk.

Becca, thinking of y'all!

Thanks all!!!
We are scheduled to take a look at the situation again October 23. So until then, I am back to the denial game while enjoying my adorable "big girl."

Her latest cute quote: When I called her my baby girl, I got "I not a baby, mommy. I a big girl. I a big girl Nannanie!"

Prayers for you guys as always Becca. Enjoy that little one, sounds like she is growing up fast!

A quote from my son when I called him Honey the other day "My name not Honey, it's Luke!!!"

This is hard...

This is a hard update to write. I've been sitting on this news for 2 days now, not saying anything. I hate taking you all on our roller coaster, really I do.

I mentioned in my last update that when we got home Tuesday I called Joan, Natalie's transplant coordinator. What I did not mention to you all was part of the conversation.

Dr. Superina (who, Natalie will tell you, "Has a hurt foot" - he just had surgery on his Achilles tendon) took a look at last week's IR study and the study from this Tuesday. Dr. Superina, the man that didn't want to give up on this liver. Dr. Superina is ready to re-transplant.

And I think that I am too.

A shunt would be too hard.

After talking to Dr. Kim (one of the IR doctors) I learned that these mush metal shunts are typically used for cancer patients to improve quality of life when there are few options left. The shunts usually fail within 6 months. Since the liver would grow around the shunt, if there was a problem with it, surgery of the liver would be necessary to remove it.

And the study from this week is showing that her bile ducts are doing very little draining on their own anymore, anyway.

From what we know now, she will most likely be re-activated on the list sometime next week.

And yet, Natalie is still reminding me that we need to "color a card for Dr. Superina. To make his foot feel better." God, I love this kid.
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www.nataliebear.com

I'm so sorry that things are not going the way we all hoped they would. I will continue to pray for you and your little bear that the new transplant will be all that you need it to be. She is such a sweet girl and the stories you tell of her really brighten my day.

Praying here and hoping things take a turn for the better.

Wow...I am so sorry to hear this news. I don't know a lot about liver transplants, but I hope you find what you need quickly and she feels better quickly.

This is devastating news for all of us and I can't phathom the feelings you have right now. I am praying constantly for your Little Bear and her parents.

Your family is always in my prayers.

Here too! I think of you often. Prayers for the bear.

So frustrating! You all will be in my prayers!

Well D@mn and Double D@mn! I am so sorry for your news. I wish I could do something--even throwing something would be good, but I am at work. (What I am doing is crying out of frustration as I type this.) I am truly amazed at Natalie's personality resilience. I will continue to keep you all in my prayers.

Continued prayers from PA. - "Because of the Lord's great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness." Lamentations 3:22-23. May you feel God's compassion fresh each morning so that you do not feel consumed by the burden that you have been carrying.

MOPN, you arn't the only one who loves the Bear, everyone who has read this thread has been touched by her in some way.